This year, two important new regulations will be impacting research with human subjects: the EU’s General Data Protection Regulation (GDPR), which kicks in May 2018, and the USA’s updated Common Rule, called the Final Rule, is in effect from Jan 2018. Both changes relate to protecting individuals’ private information and will affect researchers using behavioral data in terms of data collection, access, use, applications for ethics committee (IRB) approvals/exemptions, collaborations within the same country/region and beyond, and collaborations with industry. Both GDPR and the final rule try to modernize what today constitutes “private data” and data subjects’ rights and balance … Continue reading Data Ethics Regulation: Two key updates in 2018
A colleague who knows my fascination with data visualization pointed me to a recent interesting video created by Geoff McGhee on Journalism in the Age of Data. In this 8-part video, he interviews media people who create visualizations for their websites at the New York Times, Washington Post, CNBC, and more. It is interesting to see their view of why interactive visualization might be useful to their audience, and how it is linked to “good journalism”. Also interviewed are a few visualization interface developers (e.g., IBM’s Many Eyes designers) as well as Infographics experts and participants at the major Inforgraphics … Continue reading Data visualization in the media: Interesting video
Some get a chill when they hear “data mining” because they associate it with “big brother”. Well, here’s one more major incident that sheds darkness on smart algorithms: The Department of Homeland Security declared the end of a data mining program called ADVISE (Analysis, Dissemination, Visualization, Insight and Semantic Enhancement). Why? Because it turns out that they were testing it for two years on live data on real people “without meeting privacy requirements” (Yahoo! News: DHS ends criticized data-mining program). There is nothing wrong or evil about data mining. It’s like any other tool: you can use it or abuse … Continue reading Data mining = Evil?