Data Ethics Regulation: Two key updates in 2018

This year, two important new regulations will be impacting research with human subjects: the EU’s General Data Protection Regulation (GDPR), which kicks in May 2018, and the USA’s updated Common Rule, called the Final Rule, is in effect from Jan 2018. Both changes relate to protecting individuals’ private information and will affect researchers using behavioral data in terms of data collection, access, use, applications for ethics committee (IRB) approvals/exemptions, collaborations within the same country/region and beyond, and collaborations with industry. Both GDPR and the final rule try to modernize what today constitutes “private data” and data subjects’ rights and balance … Continue reading Data Ethics Regulation: Two key updates in 2018